The 2024 Met Gala is a wrap, but let’s be real, it was missing some major players this time around. Like, where was Blake Lively, the ultimate Met Gala royalty? She and Ryan Reynolds ghosted the event for the second year straight, and fans are totally bummed about it.
Blake Lively and Ryan Reynolds ended up skipping their second Met Gala in a row. Instead of hitting the town for the “Sleeping Beauties: Reawakening Fashion” themed bash, Blake and Ryan opted for a cozy night in with their four kiddos. Family time over fancy parties—it’s hard to argue with that!
Lively sparked hope she could attend the Met Gala when she went to a Tiffany & Co. event in New York last week. Ultimately, she let that be her big fashion moment for early May.
Blake Lively has quite the Met Gala history, even poking fun at herself for perfectly coordinating with the carpet in previous years. Her last Met Gala appearance was in 2022, where she not only attended, but also co-chaired the event. Embracing the “Gilded Glamour” theme, she stunned in an Atelier Versace gown paired with her signature Lorraine Schwartz jewelry and a tiara.
What sets Lively apart is that she styles herself, even for major events like the Met Gala. She explained that she enjoys the creativity and control it offers.
Fans were eagerly anticipating Blake Lively’s return to the 2024 Met Gala, hoping for her signature style and charisma to grace the event once again. However, when she didn’t make an appearance, disappointment swept through social media. “Blake Lively, where are you?” one fan questioned, echoing the sentiments of many who were eagerly awaiting her presence.
Another fan expressed their disappointment, saying, “pretending to not care Blake Lively isn’t there to save the night #MetGala.” It’s clear that Lively’s absence left a noticeable void for many attendees and followers of the event, underscoring her significant impact and presence at the Met Gala over the years.
Check out Blake’s top Met Gala looks of all time!
Meet Twins with the Rare Benjamin Button Syndrome, Who Became Symbols of Resilience
In a small Brazilian town, there resides an extraordinary duo of identical twins named Elis and Eloá. Their story serves as a beacon of resilience and the remarkable power of the human spirit. Afflicted with Hutchinson-Gilford Progeria Syndrome, a rare and fatal genetic disorder causing accelerated aging, these twins confront their adversities with remarkable grace and strength, earning admiration from people worldwide.
Understanding Hutchinson-Gilford Progeria syndrome
HGPS stands as an exceptionally rare disorder, impacting roughly 1 in 20 million newborns globally. Marked by rapid aging from early childhood, individuals with progeria often display growth delays, diminished body fat and hair, prematurely aged skin, joint stiffness, and severe cardiovascular issues. Typically, those with HGPS have an average life expectancy of about 14.5 years, though some may extend into their late teens or early twenties. This syndrome gained public attention through the film The Curious Case of Benjamin Button.
The condition is caused by a mutation in the LMNA gene, which produces the lamin A protein responsible for maintaining the structural integrity of the cell nucleus. The mutation results in the production of an abnormal version of the protein, called progerin, which causes cells to become unstable and die prematurely.
Elis and Eloá’s journey
Elis and Eloá swiftly captured attention because of their distinctive medical condition. Despite the physical hurdles imposed by progeria, their contagious smiles and steadfast optimism have emerged as beacons of hope and inspiration. Guilherme and Elismar, the twins’ parents, have dedicated their lives to offering the utmost care for their daughters, striving to ensure they experience as normal a life as feasible within the confines of their condition.
The family’s path has been far from easy. Their daily life is filled with demanding medical routines, including physiotherapy, aimed at addressing joint stiffness and preserving mobility. Despite these challenges, Elis and Eloá approach each day with remarkable bravery and an unparalleled enthusiasm for life, which is truly remarkable.
A global community of support
Elis and Eloá’s narrative has touched hearts worldwide, sparking a surge of solidarity from individuals and groups committed to promoting awareness about progeria and backing research endeavors. The Progeria Research Foundation, a pivotal entity in this realm, has played a vital role in propelling research forward and furnishing assistance to families grappling with the condition.
Through social media platforms, the twins’ journey is shared with a broad audience, fostering a sense of community and solidarity. Their family’s updates, documenting both the highs and lows of their daily lives, provide invaluable insights into the realities of living with progeria, while also spreading a message of hope and perseverance.
Advances in research and hope for the future
In recent years, there have been remarkable advancements in comprehending and addressing progeria. A notable milestone occurred in 2020 when the U.S. Food and Drug Administration (FDA) granted approval for the first progeria treatment: lonafarnib. This medication has demonstrated efficacy in prolonging the lives of children with progeria by mitigating the accumulation of progerin in cells, thereby decelerating the disease’s advancement.
Though a cure remains elusive, ongoing research presents promising prospects. Scientists are delving into gene-editing methodologies, like CRISPR, as potential means to rectify the genetic mutation at its root. For families such as Elis and Eloá’s, these breakthroughs offer a ray of hope for the future.
And in our other article, we recounted the remarkable story of a girl born without a nose, affectionately dubbed “Voldemort,” who refuses to let her differences define her.
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