Only weeks after Millie Smith and Lewis Cann learned they were having twin baby girls, they learned that only one would survive.
On April 30, after 30 weeks of a high-risk pregnancy, Smith delivered identical twins, Callie and Skye, the latter who lived only three hours.
Later in neonatal intensive care unit (NICU), Callie slept without her sister in the incubator, with her loving and grieving parents watching over her. In the unit with other babies, an overwhelmed mom of healthy newborn twins innocently told Smith that she was “so lucky” to not have two babies.
Crushed by the words, the new mom couldn’t find the words to explain her loss. Then, she realized that Skye’s legacy was to help other families who lose a child, and it came in the form of a purple butterfly.
In November 2015 Millie Smith and partner Lewis Cann found out they were having their first Child. Smith, who has twins in the family, said she had a “gut feeling” about having a duo and 10 weeks later, doctors confirmed she was expecting identical twin girls.
Less than two weeks after the excitement of knowing they would double the children in their home, the British couple were devastated to learn that one of their babies had a fatal condition and wouldn’t survive after birth.
“During the scan, the doctor didn’t say anything. I was very excited and loved seeing the little babies, but she was silent. Both Lewis and I immediately knew there must be a problem,” Smith said.
Doctors shared the news that one of the babies had anencephaly, which according to the Centers for Disease Control and Prevention (CDC) affects about one in 4,600 babies across the U.S. It’s a serious birth defect where a baby is born without parts of the brain and skull, and “almost all babies born with anencephaly will die shortly after birth.”
Knowing that one baby would die soon after birth, and that there were risks involved for their other baby, the couple decided to move forward with the extremely high-risk pregnancy.
Over the next several months, Smith and Cann named their twins Skye and Callie. “We knew that Skye needed to have a name before she was born,” Smith said. “Knowing she would only survive for seconds or minutes, I wanted her to be named during that time.”
The meaning behind “Skye,” she explained “was somewhere we knew she would always be, that we could look up at the sky and remember our baby.”
When Smith went into labor after only 30 weeks on April 30, she needed an emergency C-section. To help navigate the loss, the couple had a “bereavement midwife” during the birth, and they were put I a special room the called the “Daisy Room,” where families can spend time with a baby before and after she/he passes.
“When the girls were born, they both cried. This was a huge moment, as we were told that Skye would not make a noise or move,” said Smith, who was thankful to have three hours with Skye before she died. “We were cuddling Skye when she passed away. This was the worst moment in our lives. I have never ever felt heartbreak like that before. But I am proud that she fought for so long to spend time with us.”
Born premature, Callie had to stay in NICU while she gained some strength and also in the unit were three other sets of twin.
“Most of the nurses were aware of what had happened, but as time passed, people stopped talking about Skye. After about four weeks, everyone acted as though nothing had happened, meaning the families around me had no idea about our situation,” Smith recalled.
One morning, a stressed mother whose twins were also in NICU, harmlessly said to Smith that she was “so lucky” to not have twins.
“None of the other parents knew what had happened or anything about Skye. The comment was completely innocent and more out of humor…They weren’t to know that I did at one point have two.” Smith continued, “But the comment nearly broke me. I ran out [of] the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”
It was in that moment Smith realized she had to create something that would speak for parents who had just lost a baby, ensuring the misunderstanding never happens again.
She designed a poster for the NICU explaining both hospital personnel and visitors that any incubator with a purple butterfly on it means that one or more babies, in a set of multiples were lost.
“I chose butterflies, as I felt it was fitting to remember the babies that flew away, the color purple because it is suitable for both boys or girls,” said Smith.
The purple butterfly concept–now under the Skye High Foundation–has spread to hospitals in several countries around the world.
Callie is now a lively, happy seven-year-old, and twin’s memory lives in purple butterfly cards along with other initiatives to help families with babies like Skye all over the world. The purple butterflies now come in numerous forms, like ornaments, cards, blankets, stuffed animals and more.
“Ultimately I will never be able to stop this from happening but the more support groups we can set up and put things in place like the stickers the better it will be. It’s the hardest thing anyone has to deal with,” Smith said.
13 Celebrities Who Changed Their Real Names Before Becoming Famous
Sometimes we are given names that are either too hard to pronounce or too long to keep in their entirety. And if you are someone with a normal 9-5 job, that is completely fine. But, if you are someone in the entertainment industry who wants your name to be known by everyone, this may not be the best thing. That’s why many people choose to either shorten their full names or completely change them.
1. Miley Cyrus
Miley Cyrus legally changed her name back in 2008 from Destiny Hope Cyrus to Miley Cyrus. The name Miley is a rendition of her childhood nickname “Smiley” in honor of her paternal grandfather.
2. Victoria Beckham
Prior to becoming known as the fashion diva, Victoria Beckham, back in the early days of the iconic group we love, Victoria Adams was the name used for her records. However, when the Spice Girls became rising stars, she changed her name to Posh Spice. Years later, she become the famous Victoria Beckham we know today.
3. Vin Diesel
At the age of 17, Mark Sinclair was a rather big guy. He even used to work as a bouncer at a nightclub called The Tunnel. Around that time he took the name Vin Diesel and started to shave his head regularly.
4. Rachel Weisz
Early in her career, she changed her name to Rachel Vyce, but when people told her that it was too difficult to pronounce, she changed it to Kenya Campbell. She decided to keep it that way for a while, but she soon realized that it sounded unpleasant. The actress then decided to stay with Rachel Weisz and made a lot of iconic movies.
5. Natalie Portman
It was in 1994 when a very young Neta-Lee Hershlag auditioned for Leon and landed her first role in a major production. While filming, the actress changed her name to “Natalie” and took her mother’s maiden last name. Apparently, she wanted to maintain her privacy because some scenes in the movie were polemical.
6. Alicia Keys
Her real name is Alicia Augello-Cook, but she changed it and decided to have her own different stage name with a special meaning behind it. She explained, “It’s like the piano keys, and it can also open a lot of doors,” and she ended up with the name Alicia Keys and broke multiple records in her career.
7. Jamie Foxx
Eric Marlon Bishop, now known as Jamie Foxx, tried out a couple of different names when he first started doing open mic nights. When he’d sign up to the open mic lists, he used the names Tracy Brown and Stacy Green but eventually landed on Jamie Foxx.
8. Iggy Azalea
Her birth name is Amethyst Amelia Kelly, and she ended up with Iggy Azalea because she has a dog named “Iggy,” and it became her nickname. She came up with the surname Azalea, as she explained, “Because that is a street name that my mom and family live on, and it sounds very feminine, and I thought it would balance out Iggy being so masculine.”
9. Lana Del Rey
The singer’s real name is Elizabeth Woolridge Grant, but she’s now known as Lana Del Rey. When she began singing, she went by the name, “Lizzy Grant,” and also performed as “Sparkle Rope Jump Queen” until she landed on Lana Del Rey.
10. Tom Hardy
Before becoming Tom Hardy, his birth name was Edward Thomas Hardy, and he only used his first name before deciding to go by his middle name instead. Even though the Internet was aware of his true identity, it was not widely publicized.
11. Blake Lively
After Blake became an actress she decided to take the surname of her mother, Elaine Lively as her stage name.
12. Aaron Paul
His full name is Aaron Paul Sturtevant, but when he went to auditions, no one could pronounce his surname, “Sturtevant,” so he had to change it so that everyone could say it, and then he shortened it when he entered Hollywood.
13. Lorde
Lorde changed her original name at the age of 12 when she was signed to a development contract with the Universal Music Group after an agent of theirs saw footage of her singing at a middle school talent show. Her real name is Ella Marija Lani Yelich-O’Connor. The royalty hidden in the name Lord encouraged her in changing her original name, but she also added an “e” because she felt that Lord would be too masculine for a girl.
Preview photo credit Laurent VU/SIPA/Sipa Press Russia/East News, mileycyrus / Instagram
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