In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
The True Reason Why an Indian Man Has Been Holding His Arm Up Since 1973
“I don’t ask for much,” said this man who has held his arm up for 50 years now. We were deeply amazed by his extraordinary gesture, and upon discovering the real purpose behind it, we couldn’t help but eagerly share his story with our beloved readers.
Meet Amar Bharati.
A devoted Indian ascetic by the name of Amar Bharati has been tirelessly advocating for world peace for 50 years, all the while maintaining a remarkable gesture of raising his right hand in the air without ever lowering it.
A sadhu, which is a revered religious ascetic or holy individual in Hinduism (and occasionally in Buddhism and Jainism), is someone who has willingly renounced all worldly desires.
Mr. Bharati, previously a married man with three children who worked as a clerk in New Delhi, made a life-altering decision in 1970 when he resigned from his job and parted ways with his family and friends. His profound commitment led him to dedicate his existence to Shiva, one of the central deities of Hinduism, often referred to as “the primordial yogi.”
Next, he conceived a gesture that would become universally recognized.
Starting in 1973, he began raising his arm as a profound symbol of his unwavering devotion and as a powerful statement to actively advocate for peace and oppose conflicts worldwide. In his unconditional commitment, he endured excruciating pain for two long years, resulting in his arm losing all sensation and the muscles therein wasting away.
Indian sadhus frequently embark on the most rigorous forms of penance, demanding exceptional self-discipline, all in the pursuit of attaining liberation and enlightenment, referred to as Moksha in the Indian spiritual context.
Today, Bharati’s arm stands as a testament to his enduring resolve. It has become a mere skeletal structure, and his once-nails have transformed into spiraling claws.
In a candid interview, the wise sadhu shared his heartfelt message, saying, “I do not ask for much. Why are we fighting our sons among ourselves? Why is there so much hatred and enmity between us? I just want all Indians and the whole world to live in peace with each other.”
One can only fathom the immense pain he must have endured throughout his incredible journey. It is precisely these acts of extreme self-discipline and the underlying motivations behind them that have piqued the interest of individuals outside of India, even drawing the attention of historical figures such as Alexander the Great.
Mr. Amar has adapted to life with his raised arm.
He lives as if his arm is missing, using his other hand for everything, like eating, getting dressed, and bathing. Although it’s not easy, Amar firmly believes that this way of life brings him closer to Shiva and encourages people to think about being more peaceful in their daily routines.
“If you try to lower Bharati’s hand you will cause him real pain, not physical but spiritual, for he believes that his eternal salute does indeed promote world peace,” one of his acquaintances explained. Another individual addressed the practical aspect, pointing out that there’s a physical challenge as well. The cartilage in his elbow has dried out, making any attempt to move his arm a potential risk to his joint.
in his devoted pursuit of peace.
Before you go, make sure to read another article where we explain why rocking a peace sign in your photos can put you in danger.
Preview photo credit ERIC LAFFORGUE / Alamy Stock Photo
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