Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Alan Jackson: A Story of Resilience and Triumph
The iconic 64-year-old country music hero Alan Jackson has captured the hearts of millions of people for more than 40 years with his timeless fusion of classic country music and honky-tonk rhythms. It is understandable that he has sold over 80 million records during his successful career given his immense contributions to the genre. However, his accomplishment is actually the result of a tale of perseverance and success in the face of hardship.
To the surprise of his devoted fan following, Alan disclosed last year that he had been diagnosed with a degenerative neurological condition. This information was received at a time when he and his family were still dealing with the untimely death of Mattie Jackson Selecman’s father, Ben Selecman. The family is still in deep grief over this terrible loss.
Despite these significant obstacles, Alan Jackson has used music as a means of self-expression and emotional healing. His albums “Where Have You Gone” (2021) and “Angels & Alcohol” (2015) are permanently marked by these very personal encounters. Alan honors the enduring love and priceless memories of those he has lost via his artistic creations.
As an Assistant District Attorney at the Davidson County District Attorney’s office, Ben Selecman was a rising star in his field. His sense of humor and unwavering dedication to his career are remembered with fondness by his colleagues. Everyone who knew him feels profoundly bereaved and left with a huge hole in their life.
Mattie Jackson, the daughter of Alan Jackson, has found comfort in her religion and her father’s unyielding support throughout this tragic time. They worked together on a strong song called “Racing the Dark,” which was a first for the father-daughter combination. This moving song is particularly meaningful to them both and is proof of the resilience that can arise even in the most painful circumstances.
Additionally, Mattie used her sorrow to fuel an incredible project by co-founding NaSHEville, a company that aims to empower women in Music City. “Lemons on Friday: Trusting God Through My Greatest Heartbreak,” her upcoming book, is a chronicle of her path of recovery and self-discovery. In this moving book, Mattie discusses her life’s extreme challenges, her spirit’s tenacity, and how these things helped her discover a new strength and purpose.
In a moving preface to the book, Alan and his wife, New York Times best-selling novelist Denise Jackson, discuss their own experiences and how they were able to find comfort and healing following the death of a family member. For others traversing the perilous waters of loss, their own journey serves as a beacon of hope.
Alan Jackson is adamant about his love of music and his desire to keep sharing it with the world even as he navigates his own health issues, particularly Charcot-Marie-Tooth syndrome, a degenerative nerve condition. The superstar of country music faces physical challenges as a result of this illness, but he is not letting it stop him from following his love. Alan’s steadfast dedication is evidence of his fortitude and willpower.
Let us offer Alan Jackson and his family our condolences and best wishes during these difficult times. We are appreciative of his music’s inspirational and joyful effects on our lives as fans. As we look forward to his upcoming performances and hold onto the classic songs that have become our lives’ soundtrack, may he find strength in the love and support of his loyal fan base.
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