Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
A Journey Through Time: The History of Kitchen Tools
Have you ever given the history of the kitchen tools we use on a daily basis any thought? Let’s go back in time today to discover the intriguing past of one such necessary appliance: the mixer.
The Inaugural Years of Blending
Our narrative starts in the middle of the 1800s, when innovators all around the world began experimenting with ways to simplify and expedite the process of combining ingredients. A Baltimore tinner named Ralph Collier received the first mixer with revolving parts patent in 1856. In less than a year, E.P. Griffith unveiled the whisk, a game-changing appliance for mixing substances. The hand-turned rotary egg beater invented by J.F. and E.P. Monroe left their imprint as well; it was patented in the US in 1859.
The Dover Stamping Company noticed these early prototypes and purchased the patent from the Monroe Brothers. Known as the “Dover beater,” the Dover egg beaters rose to fame in the United States. The renowned Dover beater was featured in a wonderful dessert dish called “Hur-Mon Bavarian Cream” published in the Cedar Rapids, Iowa Gazette in February 1929, demonstrating how highly esteemed these beaters were.
Welcome to the Age of Electricity
The first electric mixer didn’t appear until 1885, owing to the creative imagination of American inventor Rufus Eastman. But it was the enormous commercial mixers made by Hobart Manufacturing Company that really changed the sector. They debuted a revolutionary new model in 1914 that completely altered the mixer market.
Consumers began to choose the Hobart KitchenAid and the Sunbeam Mixmaster, two well-known American brands, in the early 20th century. However, until the 1920s, when they started to become widely used for domestic use, domestic electric mixers remained a rarity in most families, despite their popularity.
The Stand Mixer: An Innovation
Engineer Herbert Johnston of the Hobart Manufacturing Company had an epiphany in 1908 when he saw a baker using a metal spoon to stir bread dough. After realizing there had to be a simpler method, he set out to develop a mechanical equivalent.
The majority of sizable bakeries had used Johnston’s 20-gallon mixer as regular equipment by 1915. The Hobart Manufacturing Company unveiled the Kitchen Aid Food Preparer, eventually dubbed the stand mixer, just four years later in 1919. This ground-breaking creation swiftly established itself as a national kitchen standard.
This indispensable kitchen appliance has come a long way, starting with the hand-turned rotary beaters of the 19th century and continuing with the invention of electric motors and the stand mixer. Many changes have been made to it to make our lives in the kitchen easier.s
Therefore, remember the long history of your reliable mixer the next time you whip up some cookies or mix up a delicious cake batter. It is evidence of human inventiveness and the drive to make daily tasks simpler.
Apart from the mixer, another useful culinary instrument with an intriguing past is the meat grinder. This device, which is sometimes referred to as a “meat mincer” in the UK, is used for chopping and combining raw or cooked meat, fish, vegetables, and other ingredients.
Karl Drais created the first iteration of this amazing device in the nineteenth century, which begins the history of the meat grinder. Long, thin strands of flesh were produced by hand-cranked meat grinders that forced the meat through a metal plate with tiny pores.
As electricity became more widely available and technology advanced, manufacturers started producing meat grinders that were powered. The smooth and consistent processing of many pounds of beef is made possible by these contemporary electric grinders. The functionality of meat grinders has been greatly increased with the addition of attachments for tasks like juicing, kibbe, and sausage-making, which are included with some versions.
Thus, keep in mind the adventure and creativity that led to the creation of your meat grinder the next time you’re chopping meat for a delicious dish or experimenting with handmade sausages. It’s evidence of how kitchen gadgets have developed to enhance and facilitate our culinary explorations.
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